so our problems with briea continue. this is so frustrating. i mean watching your child be miserable and uncomfortable is horrible. so now this is what we are trying....let me just say it is not fun.
our pediatrician here said that since we have done allergy testing and we are pretty sure she is lactose intolerant that the next step is to test her for fructose intolerance. GREAT! he wanted to get us into a specialist before we left but they did not have any openings. so now we have to wait till we move, wait to get into a new pediatrician and plead with him to refer her to a specialist because that is what she really needs to do. ARG!!
so can i just say that i had not idea how limited a fructose free diet is. i mean you think of it being in soda, candy stuff like that but not apples, grapes, and about a million other things. if your interested just google fructose intolerance. it is very eye opening. so for now this is what we are trying until we can get to a specialist who can test her to make sure that is what it is or find out what is going on with my sweet little girl. say a little prayer that her pain and discomfort will go away soon.
5 comments:
I will pray that your future specialist is able to pin point exactly what is wrong with Briea and that it's not a complicated allergy or intolerance :( Watching your child suffer and not knowing how to fix it is the most frustrating thing I have dealt with as a parent. Thinking of you guys and sweet Briea!!! Both my kids were misdiagnosed with Celiac from Iowa City. It was a miserable time until we got to the bottom of our problems. Briea is lucky to have you for a mommy to advocate for her!!!
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I'm sorry you have to wait longer. Hugs to Briea (and you).
So sorry! I hope they can pinpoint as fast as possible!
Sorry hun that sounds like it is terribly frustrating. I hope she gets everything she needs to feel better.
I will pray for little Briea and for your family. I know what it's like to be told to see a specialist for your child. It's scary, frustrating, and downright terrifying. But you know as well as I do that the Lord is our source of knowledge and comfort in these situations. My husband and I prayed together for the Lord to direct the specialists to know exactly what was going on and that they would be guided by the spirit to confirm a diagnosis, if amy. We were blessed when everything came back fine and our worries were put at ease. I will keep you all in my personal prayers! Good luck!
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